A Celebration of Carol Orzel

This event is no longer on sale.

Tuesday April 20

6:00 PM  –  7:00 PM




Please join us as we celebrate the life of Carol Orzel on what would have been her 62nd birthday! 


That week on April 23 is also FOP Awareness Day, which celebrates the day that the FOP gene, ACVR1, was discovered. 2021 marks the 15th anniversary of the announcement of the gene discovery! 


Carol was diagnosed with fibrodysplasia ossificans progressive (FOP) as a child and spent her life advocating for more research in search of a cure for this rare disease. When Carol passed away in 2018, she donated her skeleton to the Mütter Museum so that she could continue to educate the world about FOP. Learn more about Carol and FOP with Dr. Mona Al Mukaddam, Dr. Frederick Kaplan, and Dr. Eileen Shore during a virtual presentation on April 20, 2021.


The first 62 people to donate $20 will receive a pin set so you can have your own set of bling, like Carol! You can add a donation on the next page (after you click “Add to cart”). 






Mona Al Mukaddam, MD, MS, FCPP

Director, Penn Bone Center Assistant; Professor of Clinical Medicine; Assistant Professor of Orthopaedic SurgeryUniversity of Pennsylvania 



Frederick S. Kaplan, MD, FCPP 
Isaac & Rose Nassau Professor of Orthopaedic Molecular Medicine in Orthopaedic Surgery, University of Pennsylvania 



Eileen M. Shore, PhD

Cali and Weldon Research Professor in FOP Research; McKay Orthopaedic Research LaboratoryUniversity of Pennsylvania


PLEASE NOTE: This event will be pre-recorded and presented as a YouTube premiere with live chat access.